Well, I was diagnosed with the juvenile form of rheumatoid arthrtis when I was in middle school. So today I think we're going to cover a lot of different topics, but I want to first start by just asking you to give your elevator pitch if you will, of your patient journey, and then how you got to this point of being an advocate.Īshley Boynes-Shuck: Sure. It was a huge support to me, so thank you just from the bottom of my heart for everything you've done for advocates like me, because you're making a huge difference.Īshley Boynes-Shuck: Aw, thank you. And I read all of her blog posts, and it was amazing to see another young woman living with arthritis. Lilly Stairs: Well, Ashley and I - and I think I've told you this before - when I was first diagnosed with psoriatic arthritis, Ashley was one of the first advocates that I came across online. Ashley, thank you so much for joining us!Īshley Boynes-Shuck: Thanks for having me, I'm excited to be on with you. I just could not be more excited today, because we have Miss Ashley Boynes-Shuck with us, better known as Arthritis Ashley online. Lilly Stairs: Hello everyone, and welcome to the Patients Have Power Podcast. and somehow she found time to chat with us about her journey, her ongoing projects, and her life as one-half of a power couple.īelow is a transcript of the episode for your reading pleasure! ***
Among other things, she's a published author who just finished her fourth book, an animal lover and advocate, a lover of fashion who won a fashion award from the Pittsburgh Fashion Hall of Fame, an avid birdwatcher. In this episode, we speak with Ashley Boynes-Shuck - a writer, patient advocate, and a powerhouse voice for those who live with chronic conditions. Our latest Patients Have Power episode is called "If you had three wishes, what would they be?" (You can subscribe to the podcast at Apple Podcasts, or listen to it with the media player above).
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